Planning for the future among older parents’ of adult offspring with intellectual disability living at home and in the community: A systematic review of qualitative studies

    Research output: Contribution to journalReview articlepeer-review

    6 Citations (Scopus)

    Abstract

    Background: The increased longevity of individuals with intellectual disability means that ageing parents often play an extended caregiving role into late life. This systematic review evaluates qualitative evidence on futures planning among older parents whose adult children live either in the family home or out-of-home. Method: Electronic databases were searched for studies published between 2000 and 2015. Studies that met the inclusion criteria were analysed using the McMaster Critical Review Form for Qualitative Studies. Results: Of 14 articles reviewed, quality was mixed. Three over-arching themes emerged: (1) external barriers to planning involving reservations about available services; (2) internal barriers preventing parents from planning such as mutual dependency and sense of helplessness; and (3) existence of diverse “plans” and ways of managing the future. Conclusions: Parents are aware of the need to make plans or at the very least have preferences for what they would like to occur. However, a range of external and internal factors pose as barriers to this process.

    Original languageEnglish
    Pages (from-to)453-462
    Number of pages10
    JournalJournal of Intellectual and Developmental Disability
    Volume43
    Issue number4
    DOIs
    Publication statusE-pub ahead of print - 2017

    Fingerprint Dive into the research topics of 'Planning for the future among older parents’ of adult offspring with intellectual disability living at home and in the community: A systematic review of qualitative studies'. Together they form a unique fingerprint.

    Cite this