Psychometric Properties of the Needs Assessment Tool—Progressive Disease Cancer in U.K. Primary Care

Victoria L. Allgar, Hong Chen, Ed Richfield, David Currow, Una Macleod, Miriam J. Johnson

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

Background: The assessment of patients' needs for care is a critical step in achieving patient-centered cancer care. Tools can be used to assess needs and inform care planning. The Needs Assessment Tool:Progressive Disease–Cancer (NAT:PD-C) is an Australian oncology clinic tool for assessment by clinicians of patients' and carers' palliative care needs. This has not been validated in the U.K. primary care setting. Aim: The aim of this study was to test the psychometric properties and acceptability of a U.K. primary care adapted NAT:PD-C. Design: Reliability: NAT:PD-C–guided video-recorded consultations were viewed, rated, and rerated by clinicians. Weighted Fleiss' kappa and prevalence- and bias-adjusted kappa statistics were used. Construct: During a consultation, general medical practitioners (GPs) used NAT:PD-C, patient measures (Edmonton Symptom Assessment Scale; Research Utilisation Group Activities of Daily Living; Palliative care Outcome Score; Australian Karnofsky Performance Scale), and carer measures (Carer Strain Index; Carer Support Needs Assessment Tool). Kendall's Tau-b was used. Setting/Participants: GPs, nurses, patients, and carers were recruited from primary care practices. Results: Reliability: All patients' well-being items and four of five items in the carer/family ability to care section showed adequate interrater reliability. There was moderate test-retest reliability for five of six in the patients' well-being section and five of five in the carer/family ability to care section. Construct: There was at least fair agreement for five of six of patients' well-being items; high for daily living (Kendall's Tau-b = 0.57, P < 0.001). The NAT:PD-C has adequate carer construct validity (five of eight) with strong agreement for two of eight patients. Over three-quarters of GPs considered the NAT:PD-C to have high acceptability. Conclusion: The NAT PD-C is reliable, valid, and acceptable in the UK primary care setting. Effectiveness in reducing patient and carer unmet needs and issues regarding implementation are yet to be evaluated.

Original languageEnglish
Pages (from-to)602-612
Number of pages11
JournalJournal of Pain and Symptom Management
Volume56
Issue number4
DOIs
Publication statusPublished - Oct 2018
Externally publishedYes

Keywords

  • cancer
  • general practice
  • needs assessment
  • palliative care
  • Primary health care
  • unmet need

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