Psychometric validation of the needs assessment tool: Progressive disease in interstitial lung disease

Miriam J. Johnson, Armita Jamali, Joy Ross, Caroline Fairhurst, Jason Boland, Carla Reigada, Simon Paul Hart, Gunn Grande, David C. Currow, Athol U. Wells, Sabrina Bajwah, Thanos Papadopoulos, J. Martin Bland, Janelle Yorke

Research output: Contribution to journalArticle

6 Citations (Scopus)

Abstract

The inter-rater/test-retest reliability and construct validity of a palliative care needs assessment tool in interstitial lung disease (NAT:PD-ILD) were tested using NAT:PD-ILD-guided video-recorded consultations, and NAT:PD-ILD-guided consultations, and patient and carer-report outcomes (St George's Respiratory Questionnaire (SGRQ)-ILD, Carer Strain Index (CSI)/Carer Support Needs Assessment Tool (CSNAT)). 11/16 items reached at least fair inter-rater agreement; 5 items reached at least moderate test-retest agreement. 4/6 patient constructs demonstrated agreement with SGRQ-I scores (Kendall's tau-b, 0.24-20.36; P<0.05). 4/7 carer constructs agreed with the CSI/CSNAT items (kappa, 0.23-20.53). The NAT:PD-ILD is reliable and valid. Clinical effectiveness and implementation are to be evaluated.

Original languageEnglish
Pages (from-to)880-883
Number of pages4
JournalThorax
Volume73
DOIs
Publication statusPublished - 1 Sep 2018
Externally publishedYes

Keywords

  • interstitial fibrosis
  • palliative care
  • Psychometric Validation

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