TY - JOUR
T1 - Research Priorities in CKD: Report of a National Workshop Conducted in Australia
AU - Tong, Allison
AU - Crowe, Sally
AU - Chando, Shingisai
AU - Cass, Alan
AU - Chadban, S
AU - Chapman, Jeremy
AU - Gallagher, Martin
AU - Hawley, Carmel
AU - Hill, Sophie
AU - Howard, Kirsten
AU - Johnson, David
AU - Kerr, Peter
AU - McKenzie, Anne
AU - Parker, David
AU - Perkovic, Vlado
AU - Polkinghorne, Kevan
AU - Pollock, Carol
AU - Strippoli, Giovanni
AU - Tugwell, Peter
AU - Walker, Rowan
AU - Webster, Angela
AU - Wong, Germaine
AU - Craig, Jonathan
PY - 2015/8/1
Y1 - 2015/8/1
N2 - Research aims to improve health outcomes for patients. However, the setting of research priorities is usually performed by clinicians, academics, and funders, with little involvement of patients or caregivers and using processes that lack transparency. A national workshop was convened in Australia to generate and prioritize research questions in chronic kidney disease (CKD) among diverse stakeholder groups. Patients with CKD (n = 23), nephrologists/surgeons (n = 16), nurses (n = 8), caregivers (n = 7), and allied health professionals and researchers (n = 4) generated and voted on intervention questions across 4 treatment categories: CKD stages 1 to 5 (non-dialysis dependent), peritoneal dialysis, hemodialysis, and kidney transplantation. The 5 highest ranking questions (in descending order) were as follows: How effective are lifestyle programs for preventing deteriorating kidney function in early CKD? What strategies will improve family consent for deceased donor kidney donation, taking different cultural groups into account? What interventions can improve long-term post-transplant outcomes? What are effective interventions for post hemodialysis fatigue? How can we improve and individualize drug therapy to control post-transplant side effects? Priority questions were focused on prevention, lifestyle, quality of life, and long-term impact. These prioritized research questions can inform funding agencies, patient/consumer organizations, policy makers, and researchers in developing a CKD research agenda that is relevant to key stakeholders.
AB - Research aims to improve health outcomes for patients. However, the setting of research priorities is usually performed by clinicians, academics, and funders, with little involvement of patients or caregivers and using processes that lack transparency. A national workshop was convened in Australia to generate and prioritize research questions in chronic kidney disease (CKD) among diverse stakeholder groups. Patients with CKD (n = 23), nephrologists/surgeons (n = 16), nurses (n = 8), caregivers (n = 7), and allied health professionals and researchers (n = 4) generated and voted on intervention questions across 4 treatment categories: CKD stages 1 to 5 (non-dialysis dependent), peritoneal dialysis, hemodialysis, and kidney transplantation. The 5 highest ranking questions (in descending order) were as follows: How effective are lifestyle programs for preventing deteriorating kidney function in early CKD? What strategies will improve family consent for deceased donor kidney donation, taking different cultural groups into account? What interventions can improve long-term post-transplant outcomes? What are effective interventions for post hemodialysis fatigue? How can we improve and individualize drug therapy to control post-transplant side effects? Priority questions were focused on prevention, lifestyle, quality of life, and long-term impact. These prioritized research questions can inform funding agencies, patient/consumer organizations, policy makers, and researchers in developing a CKD research agenda that is relevant to key stakeholders.
KW - caregiver
KW - chronic kidney disease (CKD)
KW - clinical research
KW - disease prevention
KW - funding decisions
KW - health care worker
KW - Index Words Research
KW - Kidney Health Australia (KHA)
KW - patient
KW - patient-centered care
KW - priority setting
KW - quality of life
KW - renal replacement therapy
KW - resource allocation
KW - stakeholder
UR - http://www.scopus.com/inward/record.url?scp=84937966937&partnerID=8YFLogxK
U2 - 10.1053/j.ajkd.2015.02.341
DO - 10.1053/j.ajkd.2015.02.341
M3 - Article
VL - 66
SP - 212
EP - 222
JO - American Journal of Kidney Diseases
JF - American Journal of Kidney Diseases
SN - 0272-6386
IS - 2
ER -