Researching Reflexively with Patients and Families

Aileen Collier, Mary Wyer

    Research output: Contribution to journalArticlepeer-review

    25 Citations (Scopus)


    Patient safety research has to date offered few opportunities for patients and families to be actively involved in the research process. This article describes our collaboration with patients and families in two separate studies, involving end-of-life care and infection control in acute care. We used the collaborative methodology of video-reflexive ethnography, which has been primarily used with clinicians, to involve patients and families as active participants and collaborators in our research. The purpose of this article is to share our experiences and findings that iterative researcher reflexivity in the field was critical to the progress and success of each study. We present and analyze the complexities of reflexivity-in-the-field through a framework of multilayered reflexivity. We share our lessons here for other researchers seeking to actively involve patients and families in patient safety research using collaborative visual methods.

    Original languageEnglish
    Pages (from-to)979-993
    Number of pages15
    JournalQualitative Health Research
    Issue number7
    Publication statusPublished - Jun 2016


    • Australia
    • end-of-life issues
    • health care, users'experiences
    • illness and disease, experiences
    • illness and disease, infectious
    • palliative care
    • power / empowerment
    • qualitative
    • quality improvement
    • reflexivity
    • relationships, research
    • research, collaborative
    • safety, patient
    • video-reflexive ethnography
    • visual methods


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