Service Responses to People with Intellectual Disabilities and Epilepsy: A Systematic Review

Janet Robertson, Susannah Baines, Eric Emerson, Chris Hatton

Research output: Contribution to journalReview articlepeer-review

13 Citations (Scopus)

Abstract

Background: Epilepsy is highly prevalent in people with intellectual disabilities and is associated with increased mortality and high healthcare usage. This systematic review summarizes research on service responses to people with intellectual disabilities and epilepsy. Method: Studies published from 1990 were identified via electronic searches using Medline, Cinahl, PsycINFO and Web of Science, email requests to researcher networks, and cross-citations. Information extracted from studies was reviewed narratively in relation to identified themes. Results: Thirty-five studies met the inclusion criteria. Overall study quality was low, with no RCTs or similarly robust intervention study designs. Access to specialists was inconsistent. The importance of proxies and the need for education regarding epilepsy for staff, carers and people with intellectual disabilities were highlighted. Conclusion: There are no methodologically robust studies on service-related interventions for people with intellectual disabilities and epilepsy. Further research on improving service delivery is required to substantiate findings reported here.

Original languageEnglish
Pages (from-to)1-32
Number of pages32
JournalJOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES
Volume30
Issue number1
DOIs
Publication statusPublished - 1 Jan 2017
Externally publishedYes

Keywords

  • epilepsy
  • intellectual disabilities
  • service responses
  • systematic review

Fingerprint Dive into the research topics of 'Service Responses to People with Intellectual Disabilities and Epilepsy: A Systematic Review'. Together they form a unique fingerprint.

Cite this