Standardized Outcomes in Nephrology—Glomerular Disease (SONG-GD): establishing a core outcome set for trials in patients with glomerular disease

Simon A. Carter, Liz Lightstone, Daniel Cattran, Arvind Bagga, Sean J. Barbour, Jonathan Barratt, John Boletis, Dawn Caster, Rosanna Coppo, Fernando C. Fervenza, Jürgen Floege, Michelle Hladunewich, Jonathan J. Hogan, A. Richard Kitching, Richard Lafayette, Ana Malvar, Jai Radhakrishnan, Brad H. Rovin, Hong Zhang, Talia GutmanMartin Howell, Charlotte Logeman, Jenny I. Shen, Armando Teixeira-Pinto, Stephen I. Alexander, Yeoungjee Cho, Jonathan C. Craig, David Harris, David W. Johnson, Peter G. Kerr, Jessica Ryan, Andrea K. Viecelli, Angela Yee Moon Wang, Martin Wilkie, Nicole Scholes-Robertson, Allison Tong, SONG-GD Initiative

Research output: Contribution to journalArticle

2 Citations (Scopus)

Abstract

Glomerular diseases (GDs) impose a substantial burden on patients and health systems, and they are a major cause of end-stage kidney disease (ESKD) worldwide.1 The causes and clinical features of GD are diverse, yet as a group they share many symptoms, treatments, and outcomes (Table 1). Patients with primary and secondary GDs have mortality rates 2.7- and 3.9-fold higher than the general population, respectively, higher rates of cardiovascular events, and they report impaired quality of life.1 Treatment side effects may include diabetes, poor bone health, obesity, infection, reduced fertility, and cancer, and also affect quality of life. Prognostic uncertainty and the potential for disease progression contribute to a substantial psychological burden for patients with GD.
Original languageEnglish
Pages (from-to)1280-1283
Number of pages4
JournalKidney International
Volume95
Issue number6
DOIs
Publication statusPublished - 1 Jun 2019

Keywords

  • chronic kidney disease
  • clinical trials
  • core outcome set
  • glomerulonephritis
  • outcomes research
  • patient-centered outcomes

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    Carter, S. A., Lightstone, L., Cattran, D., Bagga, A., Barbour, S. J., Barratt, J., Boletis, J., Caster, D., Coppo, R., Fervenza, F. C., Floege, J., Hladunewich, M., Hogan, J. J., Kitching, A. R., Lafayette, R., Malvar, A., Radhakrishnan, J., Rovin, B. H., Zhang, H., ... SONG-GD Initiative (2019). Standardized Outcomes in Nephrology—Glomerular Disease (SONG-GD): establishing a core outcome set for trials in patients with glomerular disease. Kidney International, 95(6), 1280-1283. https://doi.org/10.1016/j.kint.2019.01.047