Abstract
Background and aims: Families have reported behaviour support as the highest unmet need following brain injury, and service providers are unable to meet neurobehavioural support demands in community settings. The aim of this study was to examine how to enhance the capability of family caregivers in supporting behavioural changes following brain injury, addressing unmet support needs and reducing families’ dependency on specialised services.
Methods: A multi-phase mixed methods approach was utilised, consisting of: (1) a systematic review of the literature examining family involvement in behavioural interventions following brain injury (Fisher et al., 2015); (2) a Delphi study seeking feedback from key stakeholders regarding best practices; and (3) a pilot study (n=2) examining the feasibility and acceptability of the FAB-PBS program.
Results: Results from study one and two informed the design of the FAB-PBS program, which is based on a PBS framework and principles of family-directed intervention (Fisher et al., 2017). The two family caregivers who completed the pilot study reported a reduction in the frequency and intensity of Behaviours of Concern (BOC), high satisfaction regarding participation, and increased confidence in identifying strategies and responding to BOC. The FAB-PBS program was further refined according to participant feedback. The program consists of a four-week education phase, followed by four individualised sessions and two group follow-up sessions.
Conclusions: The FAB-PBS program may be an acceptable approach to increasing the capability of family caregivers in supporting behaviour changes following brain injury. Larger studies are now required to examine the effectiveness of the program.
Methods: A multi-phase mixed methods approach was utilised, consisting of: (1) a systematic review of the literature examining family involvement in behavioural interventions following brain injury (Fisher et al., 2015); (2) a Delphi study seeking feedback from key stakeholders regarding best practices; and (3) a pilot study (n=2) examining the feasibility and acceptability of the FAB-PBS program.
Results: Results from study one and two informed the design of the FAB-PBS program, which is based on a PBS framework and principles of family-directed intervention (Fisher et al., 2017). The two family caregivers who completed the pilot study reported a reduction in the frequency and intensity of Behaviours of Concern (BOC), high satisfaction regarding participation, and increased confidence in identifying strategies and responding to BOC. The FAB-PBS program was further refined according to participant feedback. The program consists of a four-week education phase, followed by four individualised sessions and two group follow-up sessions.
Conclusions: The FAB-PBS program may be an acceptable approach to increasing the capability of family caregivers in supporting behaviour changes following brain injury. Larger studies are now required to examine the effectiveness of the program.
| Original language | English |
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| Number of pages | 1 |
| Publication status | Published - 2018 |
| Event | Neuropsychological Rehabilitation Special Interest Goup of the World Federation for NeuroRehabilitation - GrandioR Hotel, Prague, Czech Republic Duration: 15 Jul 2018 → 16 Jul 2018 Conference number: 15th |
Conference
| Conference | Neuropsychological Rehabilitation Special Interest Goup of the World Federation for NeuroRehabilitation |
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| Abbreviated title | 15th NR-SIG-WFNR Conference |
| Country/Territory | Czech Republic |
| City | Prague |
| Period | 15/07/18 → 16/07/18 |