TY - JOUR
T1 - The Burden of Home Dialysis
T2 - An Overlooked Challenge
AU - Trinh, Emilie
AU - Manera, Karine
AU - Scholes-Robertson, Nicole
AU - Shen, Jenny I.
PY - 2024/9
Y1 - 2024/9
N2 - Home dialysis offers several clinical and quality-of-life benefits for patients with kidney failure. However, it is important to recognize that home dialysis may place an increased burden on patients and their care partners. Sources of burden may include concerns about the ability to adequately and safely perform dialysis at home, physical symptoms, impairment of life participation, psychosocial challenges, and care partner burnout. Overlooking or failing to address these issues may lead to adverse events that negatively affect health and quality of life and reduce longevity of home dialysis. This study will explore aspects of home dialysis associated with burden, emphasize the need for increased awareness of potential challenges, and elaborate on strategies to overcome sources of burden. Future research should actively involve patients and care partners to better understand their motivation, experiences, and needs to better inform support strategies.
AB - Home dialysis offers several clinical and quality-of-life benefits for patients with kidney failure. However, it is important to recognize that home dialysis may place an increased burden on patients and their care partners. Sources of burden may include concerns about the ability to adequately and safely perform dialysis at home, physical symptoms, impairment of life participation, psychosocial challenges, and care partner burnout. Overlooking or failing to address these issues may lead to adverse events that negatively affect health and quality of life and reduce longevity of home dialysis. This study will explore aspects of home dialysis associated with burden, emphasize the need for increased awareness of potential challenges, and elaborate on strategies to overcome sources of burden. Future research should actively involve patients and care partners to better understand their motivation, experiences, and needs to better inform support strategies.
KW - Kidney disease
KW - Dialysis
KW - Home dialysis
KW - Clinical benefits
KW - Quality-of-life benefits
UR - http://www.scopus.com/inward/record.url?scp=85203638725&partnerID=8YFLogxK
U2 - 10.2215/CJN.0000000000000413
DO - 10.2215/CJN.0000000000000413
M3 - Article
C2 - 38190177
AN - SCOPUS:85203638725
SN - 1555-9041
VL - 19
SP - 1191
EP - 1197
JO - Clinical Journal of the American Society of Nephrology
JF - Clinical Journal of the American Society of Nephrology
IS - 9
ER -