The Caring Life Course Theory: Opening new frontiers in care—A cardiac rehabilitation example

Maria Alejandra Pinero de Plaza; Claire Hutchinson; Alline Beleigoli; Matthew Tieu; Michael Lawless; Tiffany Conroy; Rebecca Feo; Robyn A. Clark; Hila Dafny; Penelope McMillan; Regina Allande-Cussó; Alison A. Kitson

doi:10.1111/jan.16312

The Caring Life Course Theory: Opening new frontiers in care—A cardiac rehabilitation example

Maria Alejandra Pinero de Plaza, Claire Hutchinson, Alline Beleigoli, Matthew Tieu, Michael Lawless, Tiffany Conroy, Rebecca Feo, Robyn A. Clark, Hila Dafny, Penelope McMillan, Regina Allande-Cussó, Alison A. Kitson

Research output: Contribution to journal › Article › peer-review

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Abstract

Aim(s): To operationalize the Caring Life Course Theory (CLCT) as a framework for improving cardiac rehabilitation (CR) engagement and informing ways to address disparities in rural, low socio-economic areas.

Methods: A secondary analysis of data collected from 15 CR programmes to identify CR patterns through the CLCT lens using a mixed-methods approach. All analytical processes were conducted in NVivo, coding qualitative data through thematic analysis based on CLCT constructs. Relationships among these constructs were quantitatively assessed using Jaccard coefficients and hierarchical clustering via dendrogram analysis to identify related clusters.

Results: A strong interconnectedness among constructs: ‘care from others’, ‘capability’, ‘care network’ and ‘care provision’ (coefficient = 1) highlights their entangled crucial role in CR. However, significant conceptual disparities between ‘care biography’ and ‘fundamental care’ (coefficient = 0.4) and between ‘self-care’ and ‘care biography’ (coefficient = 0.384615) indicate a need for more aligned and personalized care approaches within CR.

Conclusion: The CLCT provides a comprehensive theoretical and practical framework to address disparities in CR, facilitating a personalized approach to enhance engagement in rural and underserved regions.

Implications: Integrating CLCT into CR programme designs could effectively address participation challenges, demonstrating the theory's utility in developing targeted, accessible care interventions/solutions.

Impact:

Explored the challenge of low CR engagement in rural, low socio-economic settings.

Uncovered care provision, transitions and individual care biographies' relevance for CR engagement.

Demonstrated the potential of CLCT to inform/transform CR services for underserved populations, impacting practices and outcomes.

Reporting Method: EQUATOR—MMR-RHS.

Patient Contribution: A consumer co-researcher contributed to all study phases.

Original language	English
Number of pages	18
Journal	Journal of Advanced Nursing
DOIs	https://doi.org/10.1111/jan.16312
Publication status	E-pub ahead of print - 16 Jul 2024

Keywords

cardiac rehabilitation
caring life course theory
fundamental care
mixed-methods
rural health

NTRO Type of Output

Major

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1111/jan.16312Licence: CC BY

Final published versionFinal published version, 7.4 MBLicence: CC BY

Cite this

Pinero de Plaza, M. A., Hutchinson, C., Beleigoli, A., Tieu, M., Lawless, M., Conroy, T., Feo, R., Clark, R. A., Dafny, H., McMillan, P., Allande-Cussó, R., & Kitson, A. A. (2024). The Caring Life Course Theory: Opening new frontiers in care—A cardiac rehabilitation example. Journal of Advanced Nursing. Advance online publication. https://doi.org/10.1111/jan.16312

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title = "The Caring Life Course Theory: Opening new frontiers in care—A cardiac rehabilitation example",

abstract = "Aim(s): To operationalize the Caring Life Course Theory (CLCT) as a framework for improving cardiac rehabilitation (CR) engagement and informing ways to address disparities in rural, low socio-economic areas. Methods: A secondary analysis of data collected from 15 CR programmes to identify CR patterns through the CLCT lens using a mixed-methods approach. All analytical processes were conducted in NVivo, coding qualitative data through thematic analysis based on CLCT constructs. Relationships among these constructs were quantitatively assessed using Jaccard coefficients and hierarchical clustering via dendrogram analysis to identify related clusters. Results: A strong interconnectedness among constructs: {\textquoteleft}care from others{\textquoteright}, {\textquoteleft}capability{\textquoteright}, {\textquoteleft}care network{\textquoteright} and {\textquoteleft}care provision{\textquoteright} (coefficient = 1) highlights their entangled crucial role in CR. However, significant conceptual disparities between {\textquoteleft}care biography{\textquoteright} and {\textquoteleft}fundamental care{\textquoteright} (coefficient = 0.4) and between {\textquoteleft}self-care{\textquoteright} and {\textquoteleft}care biography{\textquoteright} (coefficient = 0.384615) indicate a need for more aligned and personalized care approaches within CR. Conclusion: The CLCT provides a comprehensive theoretical and practical framework to address disparities in CR, facilitating a personalized approach to enhance engagement in rural and underserved regions. Implications: Integrating CLCT into CR programme designs could effectively address participation challenges, demonstrating the theory's utility in developing targeted, accessible care interventions/solutions. Impact: Explored the challenge of low CR engagement in rural, low socio-economic settings. Uncovered care provision, transitions and individual care biographies' relevance for CR engagement. Demonstrated the potential of CLCT to inform/transform CR services for underserved populations, impacting practices and outcomes. Reporting Method: EQUATOR—MMR-RHS. Patient Contribution: A consumer co-researcher contributed to all study phases.",

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author = "Pinero de Plaza, {Maria Alejandra} and Claire Hutchinson and Alline Beleigoli and Matthew Tieu and Michael Lawless and Tiffany Conroy and Rebecca Feo and Clark, {Robyn A.} and Hila Dafny and Penelope McMillan and Regina Allande-Cuss{\'o} and Kitson, {Alison A.}",

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AU - Lawless, Michael

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AU - Feo, Rebecca

AU - Clark, Robyn A.

AU - Dafny, Hila

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AU - Allande-Cussó, Regina

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AB - Aim(s): To operationalize the Caring Life Course Theory (CLCT) as a framework for improving cardiac rehabilitation (CR) engagement and informing ways to address disparities in rural, low socio-economic areas. Methods: A secondary analysis of data collected from 15 CR programmes to identify CR patterns through the CLCT lens using a mixed-methods approach. All analytical processes were conducted in NVivo, coding qualitative data through thematic analysis based on CLCT constructs. Relationships among these constructs were quantitatively assessed using Jaccard coefficients and hierarchical clustering via dendrogram analysis to identify related clusters. Results: A strong interconnectedness among constructs: ‘care from others’, ‘capability’, ‘care network’ and ‘care provision’ (coefficient = 1) highlights their entangled crucial role in CR. However, significant conceptual disparities between ‘care biography’ and ‘fundamental care’ (coefficient = 0.4) and between ‘self-care’ and ‘care biography’ (coefficient = 0.384615) indicate a need for more aligned and personalized care approaches within CR. Conclusion: The CLCT provides a comprehensive theoretical and practical framework to address disparities in CR, facilitating a personalized approach to enhance engagement in rural and underserved regions. Implications: Integrating CLCT into CR programme designs could effectively address participation challenges, demonstrating the theory's utility in developing targeted, accessible care interventions/solutions. Impact: Explored the challenge of low CR engagement in rural, low socio-economic settings. Uncovered care provision, transitions and individual care biographies' relevance for CR engagement. Demonstrated the potential of CLCT to inform/transform CR services for underserved populations, impacting practices and outcomes. Reporting Method: EQUATOR—MMR-RHS. Patient Contribution: A consumer co-researcher contributed to all study phases.

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ER -

The Caring Life Course Theory: Opening new frontiers in care—A cardiac rehabilitation example

Abstract

Keywords

NTRO Type of Output

UN SDGs

Access to Document

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Cite this

The Caring Life Course Theory: Opening new frontiers in care—A cardiac rehabilitation example

Abstract

Keywords

NTRO Type of Output

UN SDGs

Access to Document

Other files and links

Fingerprint

Prizes

Activities

Research output

Cite this