The Experience of Manual Wheelchair Training for People With Chronic and Progressive Conditions: Perspectives of Users and Trainers

Introduction: Global ageing and the rise of chronic and progressive health conditions that lead to mobility changes will see increased need for manual wheelchair (MWC) provision and training. Existing training guidelines and training programmes are frequently tailored towards younger users. There is a knowledge and practice gap regarding the needs of people with chronic or progressing conditions who require a wheelchair. To inform practice guidelines and training practices, this study sought the perspectives of both MWC users and trainers on their experience of MWC training.

Methods: Using a qualitative descriptive approach, semi-structured in-depth interviews were conducted with 11 MWC trainers and 6 MWC users. Data from the two participant groups were inductively coded and thematically analysed using NVivo and concept mapping to synthesise the data into themes and sub-themes.

Results: Three main themes were identified: guided support in wheelchair training reflected the need for basic support when commencing wheelchair use, person-centred training recognised the importance of tailoring training to individuals, their goals and contexts, and creating safe and supportive environments addressed how to foster acceptance of training through building a supportive training environment.

Conclusion: Access to skilled MWC trainers is essential for MWC users commencing MWC use due to a chronic or progressive condition; however, the Australian healthcare system does not currently meet this need. There is a need to explore alternate models of service delivery, such as peer-led training or upskilling of other key stakeholders, such as assistive technology suppliers. The creation of supportive environments and tailored training aligned with the abilities and goals of individual users must take precedence over resource-driven or one-size-fits-all approaches.

Patient Contribution: During the development of semi-structured interview guides, feedback was sought from an MWC user and MWC trainer to ensure the relevance and appropriateness of the questions and allow for the refinement of questions.