The health and social care needs of family carers supporting adults with autistic spectrum disorders

Dougal Julian Hare; Catherine Pratt; Mark Burton; Jo Bromley; Eric Emerson

doi:10.1177/1362361304047225

The health and social care needs of family carers supporting adults with autistic spectrum disorders

Dougal Julian Hare, Catherine Pratt, Mark Burton, Jo Bromley, Eric Emerson

Research output: Contribution to journal › Article › peer-review

54 Citations (Scopus)

Abstract

The families of 26 adults with autistic spectrum disorders (ASDs) who either lived at home or maintained close contact with their families were interviewed about their social and psychological needs related to caring for the person with ASD. In contrast to previous studies of familial carers of children with ASDs, a strong association between parental emotional distress and unmet need was found. Parents also reported a need for more autism-specific intervention and support for adults with ASDs. The study illustrates the continuing and under-reported role of families in supporting adults with ASDs.

Original language	English
Pages (from-to)	425-444
Number of pages	20
Journal	Autism
Volume	8
Issue number	4
DOIs	https://doi.org/10.1177/1362361304047225
Publication status	Published - Dec 2004
Externally published	Yes

Keywords

Autism
Families
Mental health
Respite
Stress

Access to Document

10.1177/1362361304047225Licence: In Copyright

Cite this

@article{66b0efe572c1461a92e961e9a920ea2f,

title = "The health and social care needs of family carers supporting adults with autistic spectrum disorders",

abstract = "The families of 26 adults with autistic spectrum disorders (ASDs) who either lived at home or maintained close contact with their families were interviewed about their social and psychological needs related to caring for the person with ASD. In contrast to previous studies of familial carers of children with ASDs, a strong association between parental emotional distress and unmet need was found. Parents also reported a need for more autism-specific intervention and support for adults with ASDs. The study illustrates the continuing and under-reported role of families in supporting adults with ASDs.",

keywords = "Autism, Families, Mental health, Respite, Stress",

author = "Hare, {Dougal Julian} and Catherine Pratt and Mark Burton and Jo Bromley and Eric Emerson",

year = "2004",

month = dec,

doi = "10.1177/1362361304047225",

language = "English",

volume = "8",

pages = "425--444",

journal = "Autism",

issn = "1362-3613",

publisher = "Sage Publications",

number = "4",

}

TY - JOUR

T1 - The health and social care needs of family carers supporting adults with autistic spectrum disorders

AU - Hare, Dougal Julian

AU - Pratt, Catherine

AU - Burton, Mark

AU - Bromley, Jo

AU - Emerson, Eric

PY - 2004/12

Y1 - 2004/12

N2 - The families of 26 adults with autistic spectrum disorders (ASDs) who either lived at home or maintained close contact with their families were interviewed about their social and psychological needs related to caring for the person with ASD. In contrast to previous studies of familial carers of children with ASDs, a strong association between parental emotional distress and unmet need was found. Parents also reported a need for more autism-specific intervention and support for adults with ASDs. The study illustrates the continuing and under-reported role of families in supporting adults with ASDs.

AB - The families of 26 adults with autistic spectrum disorders (ASDs) who either lived at home or maintained close contact with their families were interviewed about their social and psychological needs related to caring for the person with ASD. In contrast to previous studies of familial carers of children with ASDs, a strong association between parental emotional distress and unmet need was found. Parents also reported a need for more autism-specific intervention and support for adults with ASDs. The study illustrates the continuing and under-reported role of families in supporting adults with ASDs.

KW - Autism

KW - Families

KW - Mental health

KW - Respite

KW - Stress

UR - http://www.scopus.com/inward/record.url?scp=10944249734&partnerID=8YFLogxK

U2 - 10.1177/1362361304047225

DO - 10.1177/1362361304047225

M3 - Article

C2 - 15556960

AN - SCOPUS:10944249734

SN - 1362-3613

VL - 8

SP - 425

EP - 444

JO - Autism

JF - Autism

IS - 4

ER -

The health and social care needs of family carers supporting adults with autistic spectrum disorders

Abstract

Keywords

Access to Document

Other files and links

Fingerprint

Cite this