The health and social care needs of family carers supporting adults with autistic spectrum disorders

Dougal Julian Hare, Catherine Pratt, Mark Burton, Jo Bromley, Eric Emerson

Research output: Contribution to journalArticlepeer-review

52 Citations (Scopus)

Abstract

The families of 26 adults with autistic spectrum disorders (ASDs) who either lived at home or maintained close contact with their families were interviewed about their social and psychological needs related to caring for the person with ASD. In contrast to previous studies of familial carers of children with ASDs, a strong association between parental emotional distress and unmet need was found. Parents also reported a need for more autism-specific intervention and support for adults with ASDs. The study illustrates the continuing and under-reported role of families in supporting adults with ASDs.

Original languageEnglish
Pages (from-to)425-444
Number of pages20
JournalAutism
Volume8
Issue number4
DOIs
Publication statusPublished - Dec 2004
Externally publishedYes

Keywords

  • Autism
  • Families
  • Mental health
  • Respite
  • Stress

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