The health and social care needs of family carers supporting adults with autistic spectrum disorders

Dougal Julian Hare; Catherine Pratt; Mark Burton; Jo Bromley; Eric Emerson

doi:10.1177/1362361304047225

The health and social care needs of family carers supporting adults with autistic spectrum disorders

Dougal Julian Hare, Catherine Pratt, Mark Burton, Jo Bromley, Eric Emerson

Research output: Contribution to journal › Article › peer-review

67 Citations (Scopus)

Abstract

The families of 26 adults with autistic spectrum disorders (ASDs) who either lived at home or maintained close contact with their families were interviewed about their social and psychological needs related to caring for the person with ASD. In contrast to previous studies of familial carers of children with ASDs, a strong association between parental emotional distress and unmet need was found. Parents also reported a need for more autism-specific intervention and support for adults with ASDs. The study illustrates the continuing and under-reported role of families in supporting adults with ASDs.

Original language	English
Pages (from-to)	425-444
Number of pages	20
Journal	Autism
Volume	8
Issue number	4
DOIs	https://doi.org/10.1177/1362361304047225
Publication status	Published - Dec 2004
Externally published	Yes

Keywords

Autism
Families
Mental health
Respite
Stress

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KW - Stress

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The health and social care needs of family carers supporting adults with autistic spectrum disorders

Abstract

Keywords

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