The power of the patient voice: Conducting and using qualitative research to improve care and outcomes in peritoneal dialysis

Karine E. Manera, Jonathan C. Craig, David W. Johnson, Allison Tong

Research output: Contribution to journalArticlepeer-review

1 Citation (Scopus)

Abstract

The growing emphasis on patient-centered care has seen increased efforts in establishing partnerships and promoting shared decision-making among healthcare providers, patients, and their families (1,2). For patients with end-stage kidney disease, including those requiring peritoneal dialysis (PD), being involved in the decision-making process can often be confronting, confusing, and challenging, because possible management strategies have different and profound impacts on their health and quality of life (3). While trials can provide evidence about the relative effectiveness of interventions, qualitative research can elucidate the meaning of the risks and consequences of treatment, as well as detailed and nuanced understanding about patients’ values, goals, and priorities. Both types of information are necessary for informed decision-making.
Original languageEnglish
Pages (from-to)242-245
Number of pages4
JournalPERITONEAL DIALYSIS INTERNATIONAL
Volume38
Issue number4
DOIs
Publication statusPublished - 1 Jul 2018
Externally publishedYes

Keywords

  • end-stage kidney disease (ESKD)
  • Peritoneal dialysis (PD)
  • patient-centered care

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