TY - JOUR
T1 - The unmet needs of informal carers of stroke survivors
T2 - A protocol for a systematic review of quantitative and qualitative studies
AU - Denham, Alexandra M.J.
AU - Baker, Amanda L.
AU - Spratt, Neil
AU - Guillaumier, Ashleigh
AU - Wynne, Olivia
AU - Turner, Alyna
AU - Magin, Parker
AU - Bonevski, Billie
PY - 2018/1/31
Y1 - 2018/1/31
N2 - Introduction Stroke events deeply affect not only the stroke survivor but also often the quality of life and physical and psychological health of the family and friends who care for them. There is a need for further information about the unmet needs of these informal carers in order to develop support services and interventions. The primary objective of this review is to report and synthesise the research describing the unmet needs of carers of stroke survivors. Methods and analysis A systematic review of quantitative and qualitative studies that report on the unmet needs of carers will be conducted. The following databases will be searched for relevant articles: MEDLINE, Cumulative Index to Nursing and Allied Health Literature, PsycINFO, EMBASE, Allied and Complementary Medicine Database and Scopus. No publication date constraints will be applied. Studies will be limited to those published in English and conducted among humans. Eligible studies will report on the unmet needs of informal carers of stroke survivors, defined as family members, friends and other unpaid caregivers. Studies which focus on formal, clinical or medical caregivers will be excluded. A narrative synthesis and pooled analysis of the main outcomes will be reported. Ethics and dissemination This review will be submitted to a peer-reviewed journal. Our findings are expected to provide new insights into the unmet needs of stroke survivors' carers. Knowledge about the unmet needs of carers will inform the development and refinement of interventions and services to address these needs and better support carers of stroke survivors. The findings of this systematic review will be disseminated publicly and in peer-reviewed journals and may be the topic of research presentations. Trial registration number CRD42017067391.
AB - Introduction Stroke events deeply affect not only the stroke survivor but also often the quality of life and physical and psychological health of the family and friends who care for them. There is a need for further information about the unmet needs of these informal carers in order to develop support services and interventions. The primary objective of this review is to report and synthesise the research describing the unmet needs of carers of stroke survivors. Methods and analysis A systematic review of quantitative and qualitative studies that report on the unmet needs of carers will be conducted. The following databases will be searched for relevant articles: MEDLINE, Cumulative Index to Nursing and Allied Health Literature, PsycINFO, EMBASE, Allied and Complementary Medicine Database and Scopus. No publication date constraints will be applied. Studies will be limited to those published in English and conducted among humans. Eligible studies will report on the unmet needs of informal carers of stroke survivors, defined as family members, friends and other unpaid caregivers. Studies which focus on formal, clinical or medical caregivers will be excluded. A narrative synthesis and pooled analysis of the main outcomes will be reported. Ethics and dissemination This review will be submitted to a peer-reviewed journal. Our findings are expected to provide new insights into the unmet needs of stroke survivors' carers. Knowledge about the unmet needs of carers will inform the development and refinement of interventions and services to address these needs and better support carers of stroke survivors. The findings of this systematic review will be disseminated publicly and in peer-reviewed journals and may be the topic of research presentations. Trial registration number CRD42017067391.
KW - carers
KW - qualitative research
KW - quantitative research
KW - stroke
KW - systematic review
UR - http://www.scopus.com/inward/record.url?scp=85051954729&partnerID=8YFLogxK
UR - http://purl.org/au-research/grants/NHMRC/1045840
UR - http://purl.org/au-research/grants/NHMRC/1063206
UR - http://purl.org/au-research/grants/NHMRC/1110629
UR - http://purl.org/au-research/grants/NHMRC/100827
U2 - 10.1136/bmjopen-2017-019571
DO - 10.1136/bmjopen-2017-019571
M3 - Article
C2 - 29391371
AN - SCOPUS:85051954729
SN - 2044-6055
VL - 8
JO - BMJ Open
JF - BMJ Open
IS - 1
M1 - e019571
ER -