The value of data collection within a palliative care program

Arif Kamal, David Currow, Christine Ritchie, Janet Bull, J Wheeler, Amy Abernethy

    Research output: Contribution to journalArticle

    15 Citations (Scopus)

    Abstract

    Collecting reliable and valid data is an increasing expectation within palliative care. Data remain the crux for demonstrating value and quality of care, which are the critical steps to program sustainability. Parallel goals of conducting research and performing quality assessment and improvement can also ensure program growth, financial health, and viability in an increasingly competitive environment. Mounting expectations by patients, hospitals, and payers and inevitable pay-for-performance paradigms have transitioned data collection procedures from novel projects to expected standard operation within usual palliative care delivery. We present types of data to collect, published guides for data collection, and how data can inform quality, value, and research within a palliative care organization. Our experiences with the Quality Data Collection Tool (QDACT) in the Carolinas Palliative Care Consortium to collect data on quality have led to valuable lessons learned in creating a data collection system. Suggested steps in forming data-sharing collaborations and building data collection procedures are shared.

    Original languageEnglish
    Pages (from-to)308-315
    Number of pages8
    JournalCurrent Oncology Reports
    Volume13
    Issue number4
    DOIs
    Publication statusPublished - 2011

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  • Cite this

    Kamal, A., Currow, D., Ritchie, C., Bull, J., Wheeler, J., & Abernethy, A. (2011). The value of data collection within a palliative care program. Current Oncology Reports, 13(4), 308-315. https://doi.org/10.1007/s11912-011-0178-8