TY - JOUR
T1 - Understanding burn injury among Aboriginal and Torres Strait Islander children – results of a two-year cohort study
AU - Hunter, Kate
AU - Ryder, Courtney
AU - Coombes, Julieann
AU - Clapham, Kathleen
AU - Mackean, Tamara
AU - Holland, Andrew J.A.
AU - Fraser, Sarah
AU - Williams, Hayley
AU - Griffin, Bronwyn
AU - Möller, Holger
AU - Ivers, Rebecca Q.
AU - on behalf of the Coolamon Study Investigators
AU - Towers, Kurt
AU - Forbes, Dale
AU - Sharpe, Patrick
AU - Lo, Serigne
AU - Darton, Anne
AU - Kimble, Roy
PY - 2024/11
Y1 - 2024/11
N2 - Background: Despite known inequalities, little is understood about the burden and healthcare experiences of Aboriginal and Torres Strait Islander children who sustain a burn injury and their families. Methods: The Coolamon Study recruited parents and carers whose children (aged <16 years) were Aboriginal and / or Torres Strait Islander children and had presented to burn units across four Australian states, New South Wales (Sydney), Northern Territory (Darwin), Queensland (Brisbane, Townsville) and South Australia (Adelaide), between 2015 and 2018. Consent was obtained and carers completed baseline and subsequent interviews at 3, 6, 12 and 24 months. Data were collected on the injury event, patient care and safety, sociodemographic factors, health related quality of life (PedsQual), and psychological distress (Kessler K-5). Results: Of the 208 participants, 64 % were male; 26 % were aged less than 2 years and 37 % aged 2–4 years. The most common burn mechanisms were scalds (37 %), contact (33 %) and flame burns (21 %), with more severe burns and flame burns occurring in rural and remote settings. Most carers rated their child's care as either excellent or very good (82 %). Family distress, measured by the K-5, lessened over the 24 months, however the changes were not statistically significant. While 77 % of carers reported that they received enough information, 18 % reported they would have liked more, and 3 % reported no information was provided before treatment. Parents described mixed access to information about the types of support available to them, such as accommodation, meals, travel or cultural support. Conclusion: Data from this cohort provide rich new information about risk factors and care received from point of injury through to rehabilitation for Aboriginal and Torres Strait Islander children with burns, providing unique insights into what is needed for appropriate, culturally safe care.
AB - Background: Despite known inequalities, little is understood about the burden and healthcare experiences of Aboriginal and Torres Strait Islander children who sustain a burn injury and their families. Methods: The Coolamon Study recruited parents and carers whose children (aged <16 years) were Aboriginal and / or Torres Strait Islander children and had presented to burn units across four Australian states, New South Wales (Sydney), Northern Territory (Darwin), Queensland (Brisbane, Townsville) and South Australia (Adelaide), between 2015 and 2018. Consent was obtained and carers completed baseline and subsequent interviews at 3, 6, 12 and 24 months. Data were collected on the injury event, patient care and safety, sociodemographic factors, health related quality of life (PedsQual), and psychological distress (Kessler K-5). Results: Of the 208 participants, 64 % were male; 26 % were aged less than 2 years and 37 % aged 2–4 years. The most common burn mechanisms were scalds (37 %), contact (33 %) and flame burns (21 %), with more severe burns and flame burns occurring in rural and remote settings. Most carers rated their child's care as either excellent or very good (82 %). Family distress, measured by the K-5, lessened over the 24 months, however the changes were not statistically significant. While 77 % of carers reported that they received enough information, 18 % reported they would have liked more, and 3 % reported no information was provided before treatment. Parents described mixed access to information about the types of support available to them, such as accommodation, meals, travel or cultural support. Conclusion: Data from this cohort provide rich new information about risk factors and care received from point of injury through to rehabilitation for Aboriginal and Torres Strait Islander children with burns, providing unique insights into what is needed for appropriate, culturally safe care.
KW - Aboriginal and Torres Strait Islander
KW - Burns
KW - Children
KW - Cohort Study
KW - Cultural Safety
KW - Healthcare
UR - http://www.scopus.com/inward/record.url?scp=85199378670&partnerID=8YFLogxK
UR - http://purl.org/au-research/grants/NHMRC/APP1059038
U2 - 10.1016/j.burns.2024.07.018
DO - 10.1016/j.burns.2024.07.018
M3 - Article
C2 - 39043514
AN - SCOPUS:85199378670
SN - 0305-4179
VL - 50
SP - 1947
EP - 1956
JO - Burns
JF - Burns
IS - 8
ER -