Visibility, power and equity: Using Aboriginal and Torres Strait Islander data to drive equity in Australia

This paper arises from a presentation in the Setting the Scene session from the Royal Society of NSW and Learned Academy Forum — Reshaping Australia: Communities in Action. It describes some of the issues and challenges surrounding the collection and reporting of official data on the health and wellbeing of Aboriginal and Torres Strait Islander Peoples in Australia. It emphasizes the importance of accurate and appropriate data for policy planning and decision-making processes highlighting that despite efforts to understand and address the gaps and disparities experienced by these communities, significant challenges persist. It describes the historical and ongoing impacts of colonisation, which have led to tensions between governments and Aboriginal and Torres Strait Islander people, and some of the effects this has on the data and reporting that pertain to them. It argues for the recognition of Aboriginal and Torres Strait Islander rights to govern their own affairs and shape their own futures. To achieve this, the voices and perspectives of Aboriginal and Torres Strait Islander communities must be respected and included in the governance structures of the nation. The state of reporting on Aboriginal and Torres Strait Islander health and wellbeing is also discussed, noting the delayed and fragmented approach to data collection and the resulting health and wellbeing reporting. It argues the need for consistent and sustained efforts in this area to bridge the gaps and promote equity. By addressing these issues, policymakers can better understand and address the specific needs and aspirations of these communities, ultimately promoting their health, wellbeing, and self-determination.