'You needed to rehab … families as well': family members' own goals for aphasia rehabilitation

Tami Howe, Bronwyn Davidson, Linda Worrall, Deborah Hersh, Alison Ferguson, Sue Sherratt, Jocelyn Gilbert

    Research output: Contribution to journalArticle

    59 Citations (Scopus)

    Abstract

    Background: Aphasia affects family members in addition to the individuals with the communication disorder. In order to develop appropriate services for the relatives of people with aphasia post-stroke, their rehabilitation goals need to be identified. Aim: The aim of the current investigation was to identify the rehabilitation goals that family members of individuals with aphasia have for themselves. Methods & Procedures: Forty-eight family members of adults with aphasia post-stroke participated in in-depth semi-structured interviews to identify the rehabilitation goals they had for themselves. All the interviews were transcribed verbatim and analysed using qualitative content analysis. Outcomes & Results: Analysis revealed seven categories of goals that the family members had for themselves: to be included in rehabilitation, to be provided with hope and positivity, to be able to communicate and maintain their relationship with the person with aphasia, to be given information, to be given support, to look after their own well-being, and to be able to cope with new responsibilities. A few participants reported that, at certain times during the rehabilitation process, they did not have any goals for themselves. Conclusions & Implications: This study highlights that family members of individuals with aphasia have a number of aphasia-related rehabilitation goals for themselves. In order to provide a family-centred approach to rehabilitation, health professionals, including speech-language pathologists, need systematically to identify and address family members' goals in light of the categories revealed in this investigation.

    Original languageEnglish
    Pages (from-to)511-521
    Number of pages11
    JournalInternational Journal of Language and Communication Disorders
    Volume47
    Issue number5
    DOIs
    Publication statusPublished - Sep 2012

    Keywords

    • aphasia
    • family members
    • goals
    • qualitative

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